30 Things About Me - Living with Fibromyalgia & Mental Illness
Fibromyalgia Awareness Day on May 12
The illness/s I live with is? Fibromyalgia, Major Depression & Anxiety, OCPD (with some other "mental health" diagnosis), PCOS, Endo, Hypothyroid, Migraines, IBS, Food sensitivities
I was diagnosed with it in the year? Fibro 2012ish, Mental Health, in grade 5, Thyroid a few years ago
But I had symptoms since? All my life for mental illness, Fibro over many years of "small things" that soon weren't so small anymore!
The biggest adjustment I’ve had to make is? Not being able to do everything myself, that I need to pace myself
Most people assume? I am disinterested, lazy or selfish because I am not reliable anymore
The hardest part about mornings is? Waking up when you never want to
My favourite medical TV show is? Favourite ever... was House
A gadget I couldn’t live without? My laptop, it keeps me connected tot he world
The hardest part about nights? Getting past the anxiety to relax enough to be able to sleep
Each day I take __ pills & vitamins? Too many for me, and a lot less then a lot of people
Thought regarding alternative treatments are? I have tried modified diet, PT, Massage,
Reflexology, Chiropractor, Prolotherapy, and more! I believe they offer more benefits than traditional doctors. I am also Pro-Marijuana!.
If I had to choose between an invisible illness or visible I would choose? And Why? Visible! When I was in a cast last year, I noticed a definite shift in attitude. People was polite, they held doors, they didn't make nasty comments about using the handicap parking... I was a person!
Regarding working and career? I would love to go back to work doing SOMETHING part time, maybe in the fall!
People would be surprised to know? I HATE HOLIDAYS! All of them! Birthdays, Christmas, Halloween etc.! I faked it when the kids were younger!
The hardest thing to accept about my new reality has been? The reality that despite wanting to be a Mom more than anything, ever, and the heartache I live with being a childless mom
Something I never thought I could do with my illness that I did was? Move into my Dad's house for the last weeks of his life to help in all aspects of his care!
The commercials about my illness? Push meds
It was really hard to have to give up? Cheese... I'm serious! Really good cheese!
A new hobby I have taken up since my diagnosis is? A bad attitude!
I could have one day of feeling normal again I would? Take my niece to Disneyland!
My illness has taught me? There are 2 kinds of "How are you's?" - The person who just wanted to here "fine or good" and the person who really cares and wants to know... the second will be rare!
Want to know a secret? I feel like running away, every single day. Just pack up my car and go where no one knows me, and I can start over!
My favourite motto, scripture, quote that gets me through tough times is? "NOT TODAY" - it gets me through my own self-doubt, the bad days, puts things in perspective and lets me "let go" of things that I need to let go of! It gives myself permission to put me first!
When someone is diagnosed I’d like to tell them? DO NOTHING... don't start meds without research, don't radically change your diet overnight - it won't stick, Don't try to overhaul your entire life overnight! Do nothing, until you have a "gameplan" and knowledge! Read books, ask people, join support groups! Make educated decisions, not fear based decisions!
Something that has surprised me about living with an illness is? That people really don't understand the word "empathy" or aren't capable of it!
The nicest thing someone did for me when I wasn’t feeling well was? It's the little things... run to the grocery store, clean my kitchen, vacuum, walk my dogs... without being asked!
I’m involved with Fibromyalgia awareness because? I don't want to be invisible anymore! I am a person, with struggles and joys, the same as everyone else!
The fact that you read this list makes me feel? Blessed!